Our adventures as we homeschool, travel, and explore our way through life... which was made more scenic by the additions of Asperger's, Parkinsonism, and Gluten Intolerance. Welcome to The Journey Unexpected!
As someone who is also dealing with early-onset Parkinson's, as well as Familial (hereditary) Essential Tremour, I'm glad to see you're getting the help and support you need. All the best to you in your journey!
Thank you for stopping by and leaving a comment. I went over to your blog and looked around, too. Praying for your mom! I really like your blog and am now following. Have a great week!
I just found your blog, so nice to hear about your journey, I am at the beginning, but have not been diagnosed yet.I have the hand tremors, also numb and tingly feet, and my gait is slow and cautious.Thank you for this.
Hello Joyce,I am so glad that you found my blog and hope that I can be of some help to you. Before having an official diagnosis is SO difficult! It was the hardest part for me. I am praying for your peace and for the wisdom of the doctors. My numbness and tingly feet are evidently something other than the Parkinson's, but like I said... for some unexplained reason, mine is better now on my Parkinson's medicine. It isn't supposed to be. That is often a sign of diabetic nerve damage or another nerve issue as I understand it. That is why they were thinking that I had a neuropathy (besides the fact that there are some neuropathy issues in my family history). It is still thought that I have an additional issue, I believe. That isn't to say that you and I are not just two "special specimens". *wink* The gait being slow and cautious is definitely one of the many possible signs of Parkinson's, though. Did you get a chance to check out my other posts about Parkinson's? I have several links that you can find when you click on the tab at the top of the blog named "Parkinson's & Chronic Illness". Regardless what your diagnosis is, please let me know and let me be here for you. We have to stick together! Sending virtual hugs across the miles!
I too have Young Onset PD (YOPD) although I'm no longer especially young. I was diagnosed with PD in 1996 after 3 years of testing by various doctors. I have advice for Joyce and anyone else who has not yet received the official PD diagnosis. Get long term disability insurance coverage BEFORE you get the official diagnosis of your condition. You won't be able to after the diagnosis.
Thank you that information Donna. It is too late for me to get this insurance, but that is definitely great advice! So glad that you stopped by my little corner of the internet. Welcome to The Journey!